June 22-25 and June 29-July 2 BBS Clinics Cancelled
Marshfield Clinic Health System considers it a top priority to ensure the safety and well-being of our patients. We understand the concern each of you have about the growing cases of Coronavirus disease 2019 (COVID-19) in the United States.
We have heavily weighed how this outbreak will affect the BBS Community and the Center of Excellence for BBS. Like many of you, we are following closely the Centers for Disease Control and Prevention and World Health Organization recommendations and guidelines. We feel it is in the best interest to minimize the potential exposure to COVID-19. We regret to inform you that our BBS Clinics scheduled for June 22-25, 2020 and June 29-July 2, 2020 have been cancelled. Decisions on future clinics will be determined as this situation continues to unfold.
We continue to look forward to providing the very best care and hope to the BBS Community. If you have questions about the BBS clinics, please contact Sonia Suda by phone 715-389-3235 or email email@example.com.
The Clinical Registry Investigating Bardet-Biedl Syndrome (CRIBBS) reflects the time, energy, and vision of the BBS community, including patients, caregivers, families, and researchers, committed to improving the understanding of this complex disease. CRIBBS was designed to promote scientific efforts that touch the lives of and improve healthcare for individuals affected by BBS.
According to Bardet-Biedl Syndrome Family Association President Tim Ogden, "Building and maintaining CRIBBS is a top priority of the association. There's nothing we could do to have a greater impact on research and treatment development."
CRIBBS Worldwide Enrollment
CRIBBS has participants spread across six of the seven continents. Put another way, that’s 550+ CRIBBS participants from 34 countries and counting. Watch the following video to see how far-reaching the CRIBBS database really is.
CRIBBS 2020 Enrollment Goal
In 2020, we would like to increase the number of participants enrolled in CRIBBS to 675. As of January 30th, 2020, we're only 109 participants away from achieving that goal!