Contents tagged with newsletter
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April 2023 CRIBBS Newsletter
Greetings, The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary … more
Display in Latest News: Yes
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March 2023 CRIBBS Newsletter
Greetings, The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary … more
Display in Latest News: Yes
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February 2023 CRIBBS Newsletter
Greetings, The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary … more
Display in Latest News: Yes
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January 2023 CRIBBS Newsletter
Greetings, The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary … more
Display in Latest News: Yes
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December 2022 CRIBBS Newsletter
Greetings, The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary … more
Display in Latest News: Yes
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July 2022 CRIBBS Newsletter
The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary health care, … more
Display in Latest News: Yes
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June 2022 CRIBBS Newsletter
The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary health care, … more
Display in Latest News: Yes
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May 2022 CRIBBS Newsletter
Dear BBS Family, This will be my last contribution to the BBS Newsletter. It has been a delight to be part of the effort to bring light and hope to the BBS community. Yesterday, I … more
Display in Latest News: Yes
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March 2022 CRIBBS Newsletter
Dear BBS Family, I hope this letter will excite you about the progress of the Clinical Registry Investigating BBS (CRIBBS). We now have more than 700 individuals participating in CRIBBS. … more
Display in Latest News: Yes
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February 2022 CRIBBS Newsletter
Dear BBS Family, Happy Rare Disease Day! Bardet-Biedl syndrome is one of ~7000 rare diseases but it is the most important rare disease for each of us. I am proud of the efforts of … more
Display in Latest News: Yes