Contents tagged with newsletter
-
December 2022 CRIBBS Newsletter
Greetings, The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary … more
Display in Latest News: Yes
-
July 2022 CRIBBS Newsletter
The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary health care, … more
Display in Latest News: Yes
-
June 2022 CRIBBS Newsletter
The mission of the Center of Excellence for Bardet-Biedl Syndrome is to enrich the health and quality of life for individuals affected by BBS through compassionate interdisciplinary health care, … more
Display in Latest News: Yes
-
May 2022 CRIBBS Newsletter
Dear BBS Family, This will be my last contribution to the BBS Newsletter. It has been a delight to be part of the effort to bring light and hope to the BBS community. Yesterday, I … more
Display in Latest News: Yes
-
March 2022 CRIBBS Newsletter
Dear BBS Family, I hope this letter will excite you about the progress of the Clinical Registry Investigating BBS (CRIBBS). We now have more than 700 individuals participating in CRIBBS. … more
Display in Latest News: Yes
-
February 2022 CRIBBS Newsletter
Dear BBS Family, Happy Rare Disease Day! Bardet-Biedl syndrome is one of ~7000 rare diseases but it is the most important rare disease for each of us. I am proud of the efforts of … more
Display in Latest News: Yes
-
January 2022 CRIBBS Newsletter
Dear BBS Family, I hope you have enjoyed a wonderful holiday season. Here is our monthly update on BBS activities. Please take time to review the January updates. There are a … more
Display in Latest News: Yes
-
November 2021 CRIBBS Newsletter
Dear BBS Family, I want to thank each of you for participating in the Clinical Registry Investigating BBS (CRIBBS). The registry continues to grow and promote understanding and better care for … more
Display in Latest News: Yes
-
June 2021 CRIBBS Newsletter
Dear BBS Family, Happy Memorial Day (United States) and to all BBS Family members regardless of your homeland. I want to express my deepest appreciation to all those that have made … more
Display in Latest News: Yes
-
May 2021 CRIBBS Newsletter
Dear BBS Family, It is hard to believe that May is here. For those of us that live in cooler parts of the northern hemisphere we are excited for the arrival of spring while we recognize that it is … more
Display in Latest News: Yes